Autism Watch: 2007

What Do I Do Now?

Posted on: March 18, 2009

Tomorrow’s Barnacle Boy’s MRI appointment. We’ve done the social story, we’ve talked about how he’ll be at school late, and we’ve burned the CD for him to listen to during. I think we’re set, except for the one thing I can’t plan for or prevent: a meltdown.

The last couple of weeks, bb’s been having a lot of ‘short fuse’ moments. Out of nowhere, he blows up, usually over pretty small things. No clue when it’s going to happen, it just does. In addition to the verbal assault, his weapon of choice is a swift sharp kick to the shin. Ouch.

I have no idea what’s causing it. Meds not strong enough since he’s had a weight gain? Aggressive phase? Not feeling well?

Right now, I’m leaning towards not feeling well, though we have no real idea as to why he doesn’t feel well. He’s getting the headaches still, but they’re not 24/7. Residual feeling from headaches?

I picked him up early from school (again) yesterday. Fever of 101.7, though my thermometer here at home showed 98.7.  Looks like I may need to consider a new thermometer while we’re at it. He went to the nurse a few times again today, no fever but not feeling well. He’s going to take a pain reliever and see if he can make it the rest of the day. The message we’re trying to send is that coming home from school is only for when you really don’t feel good. None of us think he’s faking, at this point; you can see his eyes seem not quite right, and we can tell he’s not feeling well when he says he has a headache, but he also is not the best at communicating his physical feelings.

So what now? We’ve tried to get him to explain his feelings to us, but we get a lot of “I just want to be left alone.” We can’t read his mind, and that apparently irks him. (It irks me, too, but I can’t let him know.) He says he feels his friends are ignoring him. He says that we don’t let him do the things he wants to do. He says a lot of things, but where are we, really?

I’ll be glad when tomorrow’s MRI is over. The doctor can then read the results of everything (bloodwork, too) and see if there’s any physical reason. Then we’re looking at how to treat the headaches/migraines.

Meanwhile, I wore my Green Our Vaccines t-shirt yesterday. What better opportunity than St. Patrick’s day, for a non-green/non-Irish person? I’m still reading, with interest, the back-and-forth between everyone on vaccines, and I still believe that we need to re-do our vaccine schedule along with removing the garbage in them. Did you know they pulled mercury from dog vaccines because it’s a neurotoxin? Apparently dogs are more important than kids, pregnant people, and the elderly who are supposed to get the flu shot. Who knew.

I’ll update after the MRI. I’m coming back to work right after, so it won’t be an immediate update…I’ve been so bad at updating anything lately, this is nothing different. We are going camping this weekend, and bb’s really looking forward to it. Being outdoors seems to really help him, though there’s always arguments because he feels other kids leave him out. What’s new.

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2 Responses to "What Do I Do Now?"

So how did everything go? How was the camping?! That’s something we want to do with the Roc in the future. He loves to be outside too!

Hope everything is going well over there on the other coast!

Hope it went well. Update when you can.

Maybe consider a DAN chiropractor for the headaches, especially if the traditional docs come up empty. I swear by my son’s chiro and I had the worst headache of my life for several days with no relief last week and I went to him. He adjusted me and the pain disappeared in an instant. I was amazed.

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