Autism Watch: 2007

Archive for November 2008

Okay, so he doesn’t really say that to me in those words exactly, but I know he’s thinking it.

I’ve explained Crap Week in a prior post, probably a couple of times (crap is pervasive and insidious) and thankfully, I think it’s improved. In all things but ds. We’re considering a medication increase — not something I would just randomly share with people, but his behavior, with aggression, temper tantrums, self-injuries, lashing out at others, refusing to listen, being outright defiant, it’s just over the top. He’s only on a ‘baby’ dose but he’s put on 8 pounds since he started the meds and I guess it’s time. Behavioral therapy helps, but I can’t have him marking himself like he’s been doing.

Every time I turn around, he’s telling me what to do, correcting what I do, and telling me what I’m doing wrong. And yelling. Yelling a lot. He wakes up in the morning and starts. It happens as he’s going to bed. Did I mention he yells?

Autism is a nasty monster. My son is a sweet boy. Mix the two — a sweet boy with some monster behaviors, and we’re working on our ‘what next?’ list. It’s a 24/7 battle for him to listen and do what he should. It makes for long days. I guess there’s a good thing in this: I am exhausted and sleep better. Always a silver lining, right? 😉

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I’m not anti-voting, anti-politics, or God forbid someone really go out on a limb, anti-American. I am, however, anti-ruin-everything-with-politically-‘i-am-right-and-you-are-wrong-if-you’re-voting-different-than-me’ speech. I understand politics are important, but does that mean they need to be pervasive? Do they need to be not only on message boards, news shows, blogs and email lists, but in a discussion about my son’s health, my checkout at the grocery store, or the conversation with the bug guy about what type of spray to use on persistent ants?

I voted this morning. Bright and early. Dh and I spent quite a while going over the propositions and candidates, and then I did it again with my older kids. Yawn. I have my political leanings, most definitely, but they aren’t my life. Sure, the outcome of this election will affect my life, and probably in a big way,  but not only do I not think it can get any worse than the last eight years, I also still have to deal with my son’s major meltdowns this past two weeks, a possible medication increase, and figure out what dinner I can make that he’ll actually eat. So, the election is important but it’s not everything.

Election garbage is everywhere. You can’t visit an autism list or a recipe list or a scrapbooking group without the “Tsk tsk, you should vote for xxx” posts. It’s as though people think that they are THE only educated person in the bunch, and THE only person who has received The Enlightenment that will enable them to make the perfect choice. To everyone with a political opinion: great, good for you. We all have one. It wouldn’t be a democracy if we all felt the same, or had to. Get a grip. Tolerance doesn’t apply just to being tolerant of other lifestyles, but being tolerant of those who disagree and letting them be. Keywords: let them be.

One thing that concerns me is the amount of people looking to vote a presidential team in because of their views on autism and/or vaccines. While I definitely want a candidate who does believe autism is a priority and vaccines need a re-do, but it’s not my major concern. My wallet is. The economy has tanked, and we’re all paying the price. If we don’t get a handle on that first, no one will be able to afford medical treatments, insurance, vaccines, or any of that anyway. It all starts with financial comfort or at least security of sorts, and everything else comes next. And that’s my thoughts — you won’t find me on any public place sharing my feelings, but since this is MY blog, I’ll take this one chance to say it all. If someone’s voting based on autism alone, they may be sorely disappointed. And if that’s not letting autism lead our lives, something everyone says is the kiss of death, what is?


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